FAQs
What is Eli’s diagnosis?
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Eli has been diagnosed with a Diffuse Pediatric-Type High-Grade Glioma — a rare and aggressive form of brain tumor. His tumor is classified as WHO Grade 4, which is the most serious classification. He was diagnosed just two weeks after his fourth birthday.
How serious is it?
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We won’t sugarcoat it — Eli’s diagnosis is very serious. High-grade gliomas at this level are aggressive and difficult to treat. We don’t know how much time we have with him, and that reality is something we carry with us every single day. What we do know is that we are fighting with everything we have, and we are surrounding him with as much love, joy, and presence as possible. This diagnosis does not define him — Eli still has so much life to live, and we intend to make every single moment count.
What treatment is Eli receiving?
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Eli is preparing to begin radiation therapy, which will take place Monday through Friday for 6 weeks at Cincinnati Children’s Hospital. Because he is so young, he will need to be sedated for each session to keep him still during treatment. After radiation, his medical team will evaluate next steps, which may include enrollment in a clinical trial involving oral chemotherapy medications.
How can I support Eli and your family?
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There are several ways you can stand with Eli. Financial donations go directly to covering his medical bills, hospital stays, and daily living expenses while we take time off work to be by his side. You can also support through in-kind gifts, meals, gift cards, and prayer. Visit our Support Eli page to see all the ways you can help.